Community education and dialogue play an important role in shaping how the bleeding disorders community processes, understands and applies scientific research. This is certainly true when it comes to the recently published results of the SIPPET (Survey of Inhibitors in Plasma-Products-Exposed Toddlers) study and its implications for treatment options. Following circulation of BloodStream host, Patrick James Lynch's article, The SIPPET Study & MASAC’s Recommendation: What Does It Means For Me?, we learned of additional writings by community members aimed at helping to deconstruct the specifics of the research and translate the scientific findings into important considerations for individuals and families.
Trained immunologist and community member Murali Pazhayannur has created a site, The SIPPET Studied which helps to simplify the study and its findings, while also posing thoughts and questions about MASAC's recommendations. Additionally, community member Michael Birmingham's What the heck is a SIPPET, and why should I care? post lends his voice to break down what exactly was examined in the SIPPET study and how its findings might inform decisions about treatment.