Ep. 5: October 17th, 2016 - w/ Jeanne White-Ginder.

Listen to Episode 5 by clicking the play button on the audio player above, or follow any of these links to listen and subscribe on your podcast player of choice (recommended):

Description:

In Episode 5, we take a look at recent community news during our Trending Topics Segment- including a new virtual reality game designed to help reduce kids' anxiety during infusions and a new needle that won't cause bleeding after it's removed, and we take a deeper dive into three stories during our Like, Share, Comment Segment. This month we also feature a Sit Down with the iconic HIV/AIDS and hemophilia advocate Jeanne White-Ginder. All that and more on Episode 5 of BloodStream!

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Trending Topics:

  • The National Hemophilia Foundation launches a new series of educational webinars. Link

  • Nationwide Children’s Hospital in Ohio is piloting a virtual reality game designed to help reduce anxiety and stress in pediatric infusions. Link

  • Genetic Linkage Analysis may lead to a simple way to diagnose women carrying the gene causing hemophilia A.  Link (Story) Link (Study)

  • A self-sealing hemostatic needle that won’t cause bleeding when removed from a vein. Link

  • Two tools for patient reported outcomes address the need for personalization of outcomes Link.

Like, Share, Comment Segment:    

  • HFA Gears For Good Riders raise $130,000 for Helping Hands. Link

  • Barry Haarde completes his fifth trans-con bike ride, totaling 5,000 miles and raising over $52,000. Link

  • Alex Dowsett, the professional cyclist with hemophilia, launches Little Bleeders charity to encourage fitness and athletics for children with bleeding disorders. Link

  • Colorado’s Kyle Haas rides 500 miles through mountain passes. Link

  • Sleep resources curated and posted to The BloodStream Blog.

  • HIV now “undetectable” in British man. Link

  • Why talk of HIV cure is premature (from BBC). Link

  • Why it’s too soon to say HIV has been cured (from PopSci). Link

  • amfAR - statistics on young people and HIV (Link) and the US and HIV (Link)

The Sit Down:

  • USA Today’s Top 25 people (1982 - 2007). Link

  • The AIDS Memorial Grove. Link

  • The HIV Story Project. Link

  • Surviving Voices, a collaboration between the HIV Story Project and The Grove. Link

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