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In Episode 1, Patrick talks with guest Dr. Glenn Pierce about inhibitors, the new SIPPET study, and the state of bleeding disorders around the world. This, plus our June "Like, Comment, and Share" section featuring stories about notable upcoming conferences and one young man's ambitious goal to raise money and awareness for hemophilia. All this and more on this episode of BloodStream!
Presenting Sponsor: Entertainment 2 Affect Change (E2AC) is a 501(c)(3) non-profit charity organization dedicated to creating original photo, video, and digital content aimed at affecting positive change in the world. Learn more about E2AC at http://bit.ly/BSEP1E2AC.
Interview Sponsor: Stop The Bleeding! (#STBhemo) is an award-winning, comedic webseries about bleeding disorders, now in its sixth season. Join the #STBhemo gang at camp! Camp Adonwanableed is the backdrop for our biggest, most ambitious season yet. Check it out: http://bit.ly/BSEP1STB.
Learn more and register for National Hemophilia Foundation's (NHF) Annual Meeting by clicking here: http://bit.ly/BSEP1NHF.
Learn more and register for World Federation of Hemophilia's (WFH) World Congress by clicking here: http://bit.ly/BSEP1WFH.
UPDATE: In our segment on Row for Hemophilia we mistakenly reported that Chris Lee has hemophilia; in fact it is Jacob Pope who is living with hemophilia B. On June 23, 2016, eleven days after their launch the duo announced via their Facebook page that a number of adverse conditions culminated in a decision that they needed to turn back. Find details on Row For Hemophilia Facebook Page: http://bit.ly/BSEP1RFH.
Listen to Episode 1: Bonus Content - the Full Interview with Dr. Glenn Pierce: http://bit.ly/BSEP1BONUSINT.
Check out this Promo Video for The Impact Awards, taking place during NHF's Annual Meeting: http://bit.ly/BSEP1IAP.
Watch video from the inspiring speaker series Powering Through, and find information about the Powering Through session at NHF's Annual Meeting: http://bit.ly/BSEP1PT.
Read MASAC's recommendation on SIPPET:
There are also numerous community responses to SIPPET, including:
"The SIPPET Study & MASAC's Recommendation: What Does It Mean For Me?" (by Patrick James Lynch)
"SIPPET Study Simplified" (by Murali Pazhayannur),
"What the Heck Is a SIPPET, and Why Should I Care?" (by Michael Birmingham),
"TheSIPPET Bombshell (starts on pp. 4)" (by Paul Clement, pp. 4).
For more news & updates for the bleeding disorders community, click here.
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