Ep. 2: July 18, 2016 - w/ Chris Bombardier

Description

In Episode 2, Patrick talks with guest Chris Bombardier about his quest to climb the seven summits- the highest peak on each of the seven continents- while living with severe hemophilia B. This, plus news headlines & our Like, Share, Comment segment for July!

Program Notes

  • Presenting Sponsor: Entertainment 2 Affect Change (E2AC) is a 501(c)(3) non-profit charity organization dedicated to creating original photo, video, and digital content aimed at affecting positive change in the world. Learn more about E2AC at http://bit.ly/BSEP1E2AC.

  • Interview Sponsor: Stop The Bleeding! (#STBhemo) is an award-winning, comedic webseries about bleeding disorders, now in its sixth season. Join the #STBhemo gang at camp! Camp Adonwanableed is the backdrop for our biggest, most ambitious season yet. Check it out: http://bit.ly/BSEP1STB.

Headlines

  • MASAC Publishes Their Recommendation Regarding the SIPPET Study - The National Hemophilia Foundation’s Medical and Scientific Advisory Council (MASAC)'s recommendation in response to the SIPPET study can be found at: http://bit.ly/29gbg4e

  • KOATE DVI Shipments Are Put on Hold - The related medical advisory can be found at: http://bit.ly/29PAQ3S. Also, patients can sign up for the Patient Notification System from the Plasma Protein Therapeutics Association (PPTA), to be notified directly about the latest recall or withdrawal of both plasma and recombinant products at www.patientnotificationsystem.org.

  • Gene-Editing Technology About to Be Studied in People - Story link: http://bit.ly/29VD022

  • The FDA Approves Two New Products - Information on CSL Behring’s AFSTYLA for use by adults and children with hemophilia A can be found at: http://prn.to/25lmvQL and information on Epclusa from Gilead Sciences, indicated for people with hepatitis C can be found at: http://bit.ly/290Hwgp

  • NHF Launches New Website for Women With Bleeding Disorder Symptoms - The website is www.BetterYouKnow.org

  • NHF Publishes Guideline on Best Practices for Hemophilia Management - Story link: http://bit.ly/29bsXYz. Additional resource link: http://bit.ly/29LsWEG

  • National AIDS Monument Adds Hemophilia Recognition - Find information at: http://bit.ly/29MiFsS

  • HFA Launches Community Survey on HIV Memorial - Survey link: http://bit.ly/2a0r6Wx

Like, Share and Comment

Additional resources:

Hemophilia Treatment Center (HTC) Directory: http://bit.ly/16Lrgtn

National Hemophilia Foundation’s Victory For Women: https://victoryforwomen.org/

Hemophilia Federation of America's Blood Sisterhood Program: http://bit.ly/1qD1iPG

National Hemophilia Foundations's www.BetterYouKnow.org

Related links:

Barry Haarde's Wheels for the World Campaign: http://bit.ly/29LuY7S

Barry Haarde’s Wheels for the World Facebook Page: http://bit.ly/29RVnVb

Interview with Chris Bombardier

  • Chris is a Board Member of Save One Life: http://www.saveonelife.net/

  • Chris appeared as a guest of Powering Through, hosted by BloodStream host Patrick James Lynch, during Gateway Hemophilia Association’s Family Education Weekend. Watch video at www.PoweringThrough.org

For more news & updates for the bleeding disorders community, click here.