Ep. 9: February 20th, 2017 - w/ Jorge de la Riva

Click the play button below to stream the episode via SoundCloud!

In this episode, Patrick and Natalie review some advocacy best practices, take a look at the increasingly popular cryotherapy, share one mom's (anonymous) story of addiction, hemophilia and family, and during the Sit-Down segment, Patrick speaks with NHF board member Jorge de la Riva about how NHF's board works, his views on health and social advocacy, and his family's personal story of being introduced to hemophilia. All this and more on Episode 9 of BloodStream! Click "Episodes" above to stream or download.

 

Sponsors for Episode 10:

Presenting Sponsor: Stop The Bleeding! (STB!)

Supporting Sponsor: Shire

Trending Topics:

EMA Names Investigational Gene Therapy, BMN 270, a Priority Medicine for Hemophilia A: Link To Article

FDA Gives Breakthrough Designation to Hemophilia Gene Therapy: Link To Article

Daily Infusion of Low-dose Factor VIII Found to Benefit Some Hemophilia A Patients: Link To Article

LA Kelley Launches a New Edition of Raising a Child With Hemophilia: Link To Article Learn more about all of LA Kelley’s offerings: Link To Article

Bioverativ Officially Spins-Off of Biogen’s Hemophilia Business: Link To Article

HFA 2017 Policy & Government Relations Internship: Link To Article

New and Improved Blood Brotherhood Forum from HFA: Link To Article

Bioverativ Officially Spins-Off of Biogen’s Hemophilia Business: Link To Article

Like Share Comment:

Like: What is cryotherapy and is it effective/safe for people with chronic pain and/or joint problems? Link To Article.

Share: A community Mom shares her story on addiction, family, and bleeding disorders. Link To Article from HFA: Opioids, Addiction, & Bleeding Disorders (Jan 2016).

Comment: Advocacy, Washington Days, and how to advocate an advocate community member: Link To Article from NHF: How to Advocate to Protect Access to Health Insurance. Link to NHF’s Share Your Story Campaign

Sit-Down Segment with NHF Board Member Jorge de la Riva

Jorge on Twitter Link

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