Ep. 16: September 18, 2017 - w/ Andy Slavitt

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Andy Slavitt, the former head of Medicare, Medicaid, and the Affordable Care Act (ACA) under President Obama, joins us for a very special interview segment on the importance of the ACA for people with hemophilia. UK-based community advocate Laurence Woollard provides insight into the UK bleeding disorders community and his personal journey in hemophilia advocacy. Natalie leads a New York Times story on the debate surrounding how to price gene therapy treatments, and Patrick provides an overview of the recent, terrible news of a patient death during the Fitusrian clinical trial - what happened, what it means, and what happens next? Listen now on Episode 16 of The BloodStream Podcast.

Exclusive Sponsor for Episode 16: Shire

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Like: NYT: New Gene-Therapy Treatments Will Carry Whopping Price Tags

Share: Laurence Woollard’s “The Endeavour to Progress” 

Comment: Alnylam Suspends All Trials of Fitusiran After Hemophilia A Patient Dies in Phase 2 Study // Story from RareDr.com // Story from FierceBiotech

Andy Slavitt Interview

JAMA Forum: Reforming Medicaid

USA Today Column: Spare America a do-over on health care. Seize the bipartisan moment.

Other Links of Interest

Clinical Trials 101 from HemAware

Clinical Trials from the Hemophilia Federation of America

Powering Through Podcast

Ask The Expert Podcast

Making-Of Bombardier Blood Video

Stop The Bleeding! Season 7 - Behind The Story Videos

Hope For Hemophilia

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Ask The Expert Podcast: http://bloodstreamexpert.com

 

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