Ep. 25: June 18, 2018 - w/ Lisa Thibeault

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This month on BloodStream, we review major takeaways from World Federation of Hemophilia’s 2018 World Congress, Dakota Rosenfelt shares his journey of life with hemophilia, and we speak with Lisa Thibeault, the nurse coordinator from the Southeastern Ontario Regional Inherited Bleeding Disorders Program in Ontario, Canada, about the progress made in the treatment of women with bleeding disorders. All that and more on Episode 25 of The BloodStream Podcast!

Exclusive Sponsor: Shire

World Federation of Hemophilia 2018 World Congress

World Congress Daily Recaps

FDA Clears way for gene therapy

BioMarin presents data on BMN 270

Bayer presents insights on HemACTIVE study

Novo Nordisk presents data on Rebinyn and presents study data on NovoEight

CSL Behring Supports patient advocacy groups through LEAD Program

Octapharma presents data on SubQ-8 and presents data on Nuwiq

UniQure presents data their AAV5 gene therapy program

Bioverativ (a Sanofi company) presents preliminary data for BIVV001

Shire presents data on rVWF in the treatment of people with VWD

National Hemophilia Foundation’s Dawn Rotellini elected to WFH’s Board of Directors.

Genentech/Roche received Priority Review from the FDA for Hemlibra in Hem A patients without inhibitors.

coreHEM publishes Core Outcome Set for Hemophilia Clinical Trials

Spark and Pfizer present data on SPK-9001 and the modified process

New study looks at Von Willebrand Disease, Von Willebrand Factor, and Aging

 

Latest Ask The Expert Podcast: Episode 15 featuring Shari Luckey

Latest Powering Through Podcast: Episode 17 featuring Vanessa Flora, Jason Flora, and Heather Stephenson

Share Segment: Dakota Rosenfelt:  A Prescription for Success

Interview Segment: Lisa Thibeault, RN:  Let’s Talk Period, from Queen’s University + partners

 

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