Hemophilia, as anyone affected by it can tell you, tends to become a very large part of our lives. Whether it was making what came to be lifelong friends at bleeding disorders camp or attending big community events, a lot of my earliest memories revolve around the bleeding disorders community. These experiences became my guiding light and led me to what I want to do in life. In short, I want to give back to my community! This has manifested in various ways over the years, including working as a camp counselor and volunteering at various bleeding disorders events. Most recently, I created HemoTool, an unbranded logging app to help those of us living with bleeding disorders manage our care. My journey with HemoTool has shown me the importance of a consistent, well-educated medical team and has led me to my true calling; a career in pharmacy.
I am currently in pharmacy school at the University of Missouri – Kansas City where I am slated to graduate in May of 2019 with a Doctorates of Pharmacy. I am finishing up my last year of work in the classroom and am eager to begin rotations in various healthcare settings around the KC area, including outpatient care clinics, community pharmacies, and even a hospital emergency room! It is important to note my approach to pharmacy is a bit different than the traditional community pharmacist approach. I am interested in becoming a Medical Science Liaison, or MSL for short. The role of the MSL is rather unique because we basically learn EVERYTHING about a specific therapy or drug class and then we go out to educate healthcare professionals and patients about the good, the bad, and the ugly of a specific drug. Due to the impact hemophilia has had on my life and the lives of others I know, I feel my efforts to educate patients and healthcare professionals would be best directed down this path.
I have always been a person who consumes vast amounts of information (I LOVE reading; I can clear a book in a day if you give me some free time), but more importantly as it relates to my future career, I enjoy relaying information in ways others can understand. This love of information, in concert with my passion for the hemophilia community, is a constant reminder I am following my heart. I am a firm believer in “if you enjoy what you do, you will never work a day in your life!”
Hemophilia has given me and my family a lot of ups and downs throughout the years but at the age of 22, I am fortunate enough to be a highly active individual; all due to my care team. Yes, there are some caveats to my healthy lifestyle including arthritis in my left ankle which tends to limit my mobility from time to time, but I view this as an opportunity to share first-hand experiences in an educational and sympathetic way
Hemophilia can seem like a limitation but, like so many things, this condition is what you make of it. I encourage every person who may be hearing this, if you are having a hard time due to your bleeding disorder, reach out to someone in the community, attend a regional or national event; do something to get involved and don’t hesitate to ask questions. For all you know, there is at least one other who may be having or who has had the same difficulties you’re facing.☺